Resources

Ehlers Danlos Syndromes

National Organization for Rare Disorders. (2021). Ehlers Danlos syndromes. https://rarediseases.org/rare-diseases/ehlers-danlos-syndrome/

The Ehlers-Danlos Society

https://www.ehlers-danlos.com/

Hypermobile Ehlers-Danlos Syndrome

Tinkle, B., Castori, M., Berglund, B., Cohen, H., Grahame, R., Kazkaz, H., & Levy, H. (2017). Hypermobile Ehlers-Danlos syndrome (a.k.a. Ehlers-Danlos syndrome Type III and Ehlers-Danlos syndrome hypermobility type): Clinical description and natural history. American Journal of Medical Genetics. Part C, Seminars in Medical Genetics, 175(1), 48–69. https://doi.org/10.1002/ajmg.c.31538

Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders

Yew, K. S., Kamps-Schmitt, K. A., & Borge, R. (2021). Hypermobile Ehlers-Danlos syndrome and hypermobility spectrum disorders. American Family Physician, 103(8), 481–492.

Relationship Between Variant Connective Tissue (Hypermobility) and Autism Sensory Processing

Savage, G. K., Cseces, J. L. L., Davies, G., Critchley, H. D., & Eccles, J. A. (2021). #3086 Relationship between variant connective tissue (hypermobility) and autism sensory processing: Externally oriented thinking as a mediator. Journal of Neurology, Neurosurgery & Psychiatry, 92, A7-A8. http://dx.doi.org/10.1136/jnnp-2021-BNPA.19

Health and Social Care Professionals' Approaches to Self-Management Support for People with Long-Term Conditions

Morgan, H. M., Entwistle, V. A., Cribb, A., Christmas, S., Owens, J., Skea, Z. C., & Watt, I. S. (2017). We need to talk about purpose: A critical interpretive synthesis of health and social care professionals' approaches to self-management support for people with long-term conditions. Health Expectations: An International Journal of Public Participation in Health Care and Health Policy, 20(2), 243–259. https://doi.org/10.1111/hex.12453

Learning the Difference Between Occupational Therapy and Physical Therapy

Vecchio, K. (2021, January 5). Learning the difference between occupational and physical therapy. Ehlers-Danlos News. https://ehlersdanlosnews.com /2021/01/05/ difference-between-occupational-physical-therapy/

Fact Sheet: Occupational Therapy's Role with Chronic Disease Management

American Occupational Therapy Association. (2015). Fact Sheet: Occupational therapy’s role with chronic disease management. https://www.aota.org/-/media/Corporate/Files/AboutOT/ Professionals/WhatIsOT/HW/Facts/ FactSheet_ChronicDiseaseManagement.pdf

Management of Chronic Pain in Ehlers-Danlos Syndrome

Zhou, Z., Rewari, A., & Shanthanna, H. (2018). Management of chronic pain in Ehlers-Danlos syndrome: Two case reports and a review of literature. Medicine, 97(45), e13115. https://doi.org/10.1097/MD.0000000000013115

Forefront Therapy

https://www.forefronttherapy.org/